May Is A HUGE Spoonie Awareness Month! 💙🥄

May Is A HUGE Spoonie Awareness Month! 💙🥄

May is a HUGE spoonie awareness month! 💙🥄

#als #lymedisease #lupus #asthma #mentalhealth #cysticfibrosis #arthritis #celiac #huntingtonsdisease #ehlerdanlossyndrome #multiplesclerosis #fibromyalgia #bechets #bpd #stroke #braintumor #mecfs

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More Posts from Ibs-qveen and Others

1 year ago
ibs-qveen - chronic illness

[text:

"Just because a doctor hasn't found something, doesn't mean that something isn't there.

Read that again."]


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psa
1 year ago

how to get rid of nausea (or at least reduce it)

ok y'all so it's almost 1 in the morning and i can't sleep so i figured i might as well make use of my time. these tips are from what have personally worked well for me as a person who's been dealing with ibs and gerd since basically birth. of course these might not work for everyone, this is just what has helped me the most :)

first, make sure you've taken your meds!

sip on some cold water. preferably with ice.

get some cool air. whether that's through a window or just a fan.

drip some cold water onto the veins of your wrist. i know this sounds kinda weird, but my dad said it's a trick he learned in the military to help nausea. it's worked pretty well for me, personally. though the effect is temporary.

sip on some cola or another fizzy pop. carbonation helps you burp, and you honestly might just have some trapped gas. you'd be shocked how just one good, trapped burp makes you feel like you need to projectile vomit. drink in small, frequent amounts, not large gulps(for the love of god don't take large gulps. please). this is honestly one of the best tricks for nausea for me, it helps within minutes or sometimes a bit longer.

sniff some rubbing alcohol. again, kinda weird, but it works pretty well for some reason.

drink some pepto bismol. a life saver honestly.

take some tums. i highly recommend the peppermint flavored ones. tums are usually for acid reflux/gerd, but the peppermint really helps the nausea part for me. that's why i usually get these bc i'm killing two birds w/ one stone lol

sleep at a high elevation. this helps stomach contents from coming back up. there's been many times where i've had to sleep at a 90° angle. get out your pillows and stuffed animals to make one giant mountain if you have to (that's what i do at least).

sleep on your left side. if you really want to sleep on your side, sleeping on the left keeps the stomach contents down the best.

distract yourself. either watching your favorite show, playing a game, or, hell, even working. this might be a bit tricky if the nausea is overwhelming, though.

avoid strong smells. rubbing alcohol is the exception here, but strong smelling things (esp food) has always made my nausea much worse.

avoid spicy/punch-to-the-face type food. eat simple foods like toast, saltine crackers, or applesauce. my personal favorite is dried seaweed (salted)!

sit upright; try not to slouch. sitting upright helps you digest food properly and gets rid of any trapped gas as well.

don't move around a ton. of course, some simple stretching is beneficial, but i'm just suggesting you don't go run for a few miles when you're feeling like shit <3


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9 months ago

There was a TikTok of an (American) woman who was documenting her husband’s ICU room and expressing displeasure with the state it was in, it was generally unclean with broken equipment, rust stains, clipped flooring, things that can make a medical environment unsafe. I opened the comments expecting people to be like “Wow, that’s scary. And a huge infection risk. ICU stays often cost patients upwards of $100k and not enough of that money is going to maintenance and cleaning.” But instead it was nurses being utterly vile to this woman. Not saying “You’re right, it’s terrible that we’re forced to do our jobs in unsafe, unclean and outdated environments.” they were telling her she was a prime example of why patients’ families were the worst part of their job.

The hospital that charged my insurance $87k for a single endoscopy & colonoscopy performed on me was recently fined for having dirty equipment. If not on sanitation, if not on giving nurses and providers better wages, if not on updating the facility, where the hell did that money go? If nurses could band together to attack and criticize hospital administration and the American medical system in the way they band together to attack and criticize patients and advocates online, all of our lives could improve.

But of course it is easier to raise the sword against the vulnerable person dependent on your care, on the people often experiencing the worst day of their life when they are too frightened and in pain to treat you with courtesy. It’s easier to lash out at the patient inquiring about their medication after waiting two hours than to lash out at the people responsible for making you responsible for 30 patients at once.

I don’t think anyone blames nurses for hospital rooms being nasty. It’s not their job. It’s the job of custodial staff and maintenance. It’s the job of administration to fund those departments. It’s a problem at the top. If we could all look upwards instead of down when it comes to who we criticize and blame, we could make progress.


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8 months ago

anyway here's to disabled people who are not healing. disabled people who are not recovering, ever. people with disabilities that only get worse and worse over time. people who cannot access treatment for their disabilities or whose disabilities simply aren't treatable. people who know they'll only get more and more disabled as time goes on. people who know their disability will kill them sooner or later. you are seen, you are important, you are not dead weight, and you deserve support.


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9 months ago

friendly reminder you dont need a diagnosis to be in disability spaces, as an example im in constant pain and fatigue, have migraines every week and my joints hurts to a point I can't write, but since familiar gaslighting/medical trauma and the fact that im an indigenous, brown skin fat man a diagnosis is fucking hard (but im in my way! :)) , but i still deserve a safe space to talk about my experiences and to feel valuable and supported.

never feel like youre interrupting someone's space or that you shouldn't be here cause you dont have a diagnosis, disabilities existed before diagnosis


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psa
1 year ago

Hot girls have GI issues pride flag

Hot Girls Have GI Issues Pride Flag

light pink: is girl

hot pink: hot

red: my tummy hurts but im being so brave about it

brown: oh my god im about to shit myself


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8 months ago

Before you pay that not-covered hospital bill:

I want to take a min to spread awareness for the No Surprises Act after noticing a reddit post earlier.

This protection for patients just popped up in the past couple years, and the one major downside is that it's up to the patients to speak up to make use of it, but not everyone knows what it is.

"If you have private health insurance, these new protections ban the most common types of surprise bills. If you’re uninsured or you decide not to use your health insurance for a service, under these protections, you can often get a good faith estimate of the cost of your care up front, before your visit."

Consumer fact sheet

Typically, health insurance companies will help pay for bills from "in-network" providers, AKA their VIP inner circle gang turf. They won't help pay if you get medical care from another gang's henchmen (out of network).

This means that sometimes, a person would go to the hospital, which they knew had been covered by their insurance before, so they expect it's going to be relatively affordable. But they didn't know that multiple medical "gangs" were working in the same hospital. Their anesthesiologist, for example, was from a different gang. That specialist was out of network even though the surgeon and nurses were all in network.

Boom. Big bill for thousands of dollars and their insurance refuses to help pay it.

Before You Pay That Not-covered Hospital Bill:

But now we have this law! The No Surprises Act means that insurance companies need to cover "surprise" expenses (under certain conditions).

If you don't have health insurance, hospitals and clinics need to give you an accurate quote before you get services, then foot the bill if they were too far off the mark.

The Fact Sheet section of the Centers for Medicare and Medicaid services have some wonderful user-friendly resources for you about health insurance and how this act works.

Keep in mind that Medicare and government-run programs always have weird rules for everything, so you might have different (yet similar) protections through those programs.

If you have a medical bill that wasn't covered by insurance and you think it might count as a surprise bill, please check out your rights and consider fighting it instead of letting it become a stressful expense or debt you can't repay.

Go here to start figuring things out for your situation:

cms.gov
What you should know about new protections Learn and understand what’s new to help protect you from experiencing surprise medical bills.

Health insurance companies have way, waaaaay too much power over our lives. We need every drop of protection we can get - but it only counts as much as we can understand and use those protections!


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5 months ago

join a community for all the girlies with gi issues.

warning: please be patient as i continue to work on it.

Discord
Check out the GI GIRLIES community on Discord - hang out with 1 other members and enjoy free voice and text chat.

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5 months ago
ibs-qveen - chronic illness

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ibs-qveen - chronic illness
chronic illness

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